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Posted 10/26/2023 by Positive Aging Community

Special Event: Frontotemporal Dementia (FTD): Misdiagnosed & Misunderstood

Stacy C. Sherwood Community Center
Special Event: Frontotemporal Dementia (FTD): Misdiagnosed & Misunderstood
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Start Date
12/04/2023 11:30 am
End Date
12/04/2023 1:00 pm

Join us for a special NRSRN Lunch that will explore Frontotemporal disorders (FTD), sometimes called frontotemporal dementia.

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While the most common form of dementia among all age groups is Alzheimer’s disease, Frontotemporal degeneration (FTD) is the most common for those diagnosed before age 60. It can occur as early as 21and as late as 80. FTD differs from other types of dementia in that memory loss is not a hallmark symptom. A group of related, heterogeneous disorders, initial symptoms bring progressive changes to personality, behavior, decision making, communication or movement. The Association for Frontotemporal Degeneration will present the signs and symptoms of FTD, the importance of early diagnosis and person-centered care, and highlight current research opportunities and support resources for those living with FTD and their care partners.

Presented by Will Reiter, AFTD Education Program Manager and Jen Morabito, AFTD Ambassador, you’ll hear both the family experience of this challenging disease and learn how it differs from other dementias as far as symptoms, support and care.

Objectives:

Discover helpful resources provided by The Association for Frontotemporal Degeneration

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Presenters:

Will Reiter, MA | AFTD, Education Program Manager

Will joined AFTD in May 2021 as Education Program Manager. He works to expand AFTD's relationships with healthcare providers in order to support early FTD diagnosis and comprehensive person-centered FTD care. He has worked in the dementia field for more than 30 years. In a variety of local and regional settings, he has provided direct support and education to those living with dementia, care partners, and healthcare providers. William previously worked at the Family Caregiver Alliance in San Francisco as well as the Massachusetts/New Hampshire Chapter of the Alzheimer’s Association. Most recently, he served as the Health Systems Director for the Alzheimer’s Association, Delaware, New Jersey, and Pennsylvania region, initiating and strengthening connections to clinicians and regional health systems.

Jen Morabito | AFTD Ambassador, Maryland

Jen first learned about AFTD after her mother was diagnosed with FTD in 2014. She began hosting events for AFTD’s Food for Thought campaign, and became known for her Cindy’s Cakes fundraiser. Soon after, she became a liaison to assist other Food for Thought hosts. Jen has been in close contact with volunteers and staff at AFTD, and has found a strong sense of community and support, which she wants to share with others. As an Ambassador, Jen is looking forward to working with individuals, groups, and agencies to support AFTD’s mission of awareness, education, support, and advocacy. 

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