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Posted by Positive Aging Community on 11/14/2023

A NEW MILESTONE IN DIAGNOSING PARKINSON’S DISEASE AND RELATED DISORDERS


Learn about the SYN-ONE TEST®, a skin biopsy test that provides accurate pathological evidence to aid in the diagnostic evaluation of patients with clinical features suggestive of a synucleinopathy like Parkinson’s disease and related disorders.

Questions Asked

  • Good afternoon. Can the panelist speak about Vascular Parkinson?
  • "So how Early should test be administered? After tremors or other symptoms? Thank you"
  • How long has this test been available?
  • RBD???
  • I might have missed this earlier, but isn’t there already a clinical test available that is based on the spinal fluid testing and Kinked alphasynucien about which recent medical article was published?
  • Is there somewhere, perhaps an article that is in layman's terms, that describes the new drugs developed to help with Parkinsons.
  • Just want to mention that I was in care for Parkinson's symptoms since April 2023, first being told I had Parkinson's, then being told they weren't sure. Following that second opinion, I had many tests including a Datscan, with nothing conclusive.  Last Friday, I was told on the basis of a skin biopsy that I conclusively have Parkinson's.  I am very thankful for the availability of this new test! I have a second condition that confused the diagnosis.  The skin biopsy clarified things.
  • "Multiple sclerosis, drop foot, tremors, claw foot, and narcolepsy and epilepsy...Does your Virginia center provide health care for any of these conditions?"

Chat Transcript

12:08:07     From  Steve Gurney - ProAging Community : Inova Parkinson's and Movement Disorders Center https://www.inova.org/our-services/inova-parkinsons-and-movement-disorders-center

12:08:09     From  Karen Thompson   to   Hosts and panelists : BrightStar Care Home Care, Nurse Liaison Karen Thompson. 703-267-2380 - k.thompson@brightstarcare.com

12:08:17     From  Steve Gurney - ProAging Community : From Karen Thompson to All Panelists 12:08 PM

BrightStar Care Home Care, Nurse Liaison Karen Thompson. 703-267-2380 - k.thompson@brightstarcare.com

12:09:06     From  Bryant Decker   to   Hosts and panelists : Bryant Decker; CND Life Sciencesbdecker@cndlifesciences.com

12:09:14     From  Steve Gurney - ProAging Community : From Bryant Decker to All Panelists 12:09 PM

Bryant Decker; CND Life Sciencesbdecker@cndlifesciences.com

12:09:18     From  Susan I Wranik : Susan I. Wranik, Speech-Language Pathologist.   Assessment and treatment in-home of speech, memory and swallowing in DMV. Online communication clubs for exercise in vocal strengthening in collaboration with PFNCA (Parkinson’s Foundation of the National Capital Area). Susan I. Wranik, MS MA CCC-SLP LSVT LOUD Certified Clinician   susan@speakskill.com 301 520 2332  SOS:  Here to help!

12:12:21     From  Kathleen STEED   to   Hosts and panelists : Dr. Falconer’s face is so dark that none of his features can be seen.

12:17:29     From  JN Harrigan : Good afternoon. Can the panelist speak about Vascular Parkinson?

12:20:49     From  Betty Bahadori : Can someone spell SIN 1 ?

12:20:56     From  Dr. Drew Falconer   to   Hosts and panelists : SynOne

12:21:11     From  Steve Gurney - ProAging Community : The Syn-One Test is the first commercially available test of its kind, applying world-class science and proven laboratory techniques to detect and visualize abnormal alpha-synuclein in cutaneous nerves. Delivers greater than 95% sensitivity and specificity as reported in multiple studies. https://cndlifesciences.com/syn-one-test/

12:25:49     From  Kathleen STEED   to   Hosts and panelists : Is the Syn-One test covered by most insurances?  If not, what is the cost?

12:27:05     From  Margi Helsel-Arnold   to   Hosts and panelists : So Bryant should we assume many more neurologists will have access to this test at this time? Margi, Care Manager

12:29:06     From  Judy Wagner : My Mom had Lewy Body dementia with Parkinsonian symptoms.  I asked what the difference was between this and having Parkinson's disease with Lewy Body dementia symptoms.  The answer was whether the tremors or cognition issues appeared first and there was no practical difference.  Is that correct?  Anything this test can add to it?

12:31:07     From  Paul Steinmetz   to   Hosts and panelists : When will this presentation be on line?

12:37:51     From  Kathleen STEED   to   Hosts and panelists : RBD diseases are ?

12:47:29     From  Kathleen STEED   to   Hosts and panelists : Both presenters are fantastic at making understandable what undoubtedly is an extremely complicated subject.  Bravo!

12:51:53     From  Dr. Drew Falconer   to   Hosts and panelists : www.ipmdc.org

12:52:20     From  Susan I Wranik : What's that link again?

12:53:01     From  Steve Gurney - ProAging Community : Ruth Grover 12:51 PM 

Just want to mention that I was in care for Parkinson's symptoms since April 2023, first being told I had Parkinson's, then being told they weren't sure. Following that second opinion, I had many tests including a Datscan, with nothing conclusive.  Last Friday, I was told on the basis of a skin biopsy that I conclusively have Parkinson's.  I am very thankful for the availability of this new test! I have a second condition that confused the diagnosis.  The skin biopsy clarified things.

12:53:43     From  Steve Gurney - ProAging Community   to   Hosts and panelists : From Dr. Drew Falconer to All Panelists 12:51 PM

www.ipmdc.org

12:54:20     From  Sonia Gow  ipmdc.org : For IPMDC slide decks please check https://ipmdc.org/ipmdc-febcon23/

12:54:50     From  Bryant Decker   to   Hosts and panelists : bdecker@cndlifesciences.com

12:54:54     From  Sonia Gow  ipmdc.org : also https://ipmdc.org/ipmdc-on-the-internet/

12:54:59     From  Leslie McTyre : Thank all of you for impressive information.

12:55:01     From  Steve Gurney - ProAging Community   to   Hosts and panelists : From Bryant Decker to All Panelists 12:54 PM

bdecker@cndlifesciences.com

12:55:26     From  Cyndie Taylor : Thank you

12:55:39     From  Lolita Royal   to   Hosts and panelists : Great information thank you My mom had Parkinsons

12:55:46     From  deena imbriglia : Thank you for all you are doing for so many of us.


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