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for more than 33 years
Live & Interactive Discussion with Nicole J Smith, the author of Diagnosis Dementia: Your Guide for Eldercare Planning and Crisis Management An official diagnosis of dementia from a daughter's point of view, Nicole tells her story of shock, research, worry, discovery, and ultimate success. She also shares information and tips to help others find their way through one of life's most difficult passages.
Chat Transcript
12:05:52 From Nicole Smith to Hosts and panelists : www.njsmithbooks.com
12:07:49 From veda vazquez : good day everyone from Coatesville, Pa. this is Veda. I was wondering if you can do another session on safety in the home, there were so many resources that I did not think of. my fiancée is now in need of these types of equipment. thank you so much I learn so much each time I attend.
12:08:12 From Steve Gurney - ProAging Community : Diagnosis Dementia: Your Guide for Eldercare Planning and Crisis Management https://www.amazon.com/Diagnosis-Dementia-Eldercare-Planning-Management/dp/B0CK4CX8VK
12:09:01 From Steve Gurney - ProAging Community : The 36-Hour Day
A Family Guide to Caring for People Who Have Alzheimer Disease and Other Dementias https://www.press.jhu.edu/books/title/12151/36-hour-day
12:09:12 From Jean Ross to Hosts and panelists : Lived experience is the best experience and thank you Nicole for having the bandwidth to be guide for others while you are the throes of caregiving!
12:10:17 From Joyce Dimmock : Congratulations on your book Nicole and your journey!
12:10:59 From Margie McNally : Similar journey. Thank you for this opportunity to learn.
12:11:57 From Steve Gurney - ProAging Community : Daughterhood is a community of people supporting each other in the challenges, realities, and joys of caregiving through connection, support, and education. https://daughterhood.org/
12:12:14 From Jean Ross to Hosts and panelists : Daughterhood is a community of people supporting each other in the challenges, realities, and joys of caregiving through connection, support, and education.https://daughterhood.org/
12:12:23 From Suman Nayyar to Hosts and panelists : What’s the name of support group for caregivers Nicole?
12:12:44 From Steve Gurney - ProAging Community : The National Academy of Elder Law Attorneys (NAELA) is dedicated to improving the quality of legal services provided to older adults and people with disabilities. https://www.naela.org/
12:13:17 From Steven Gordon to Hosts and panelists : I am currently aging solo. No family that can look after me if I get dementia. Are there things that I should look for in myself to determine if I have dementia? I have a good friend who was diagnosed with Alzheimer and he is not aware of his limitations.
12:13:46 From Steve Gurney - ProAging Community : Positive Aging Community Champions who are Elder Law Attorneys https://www.retirementlivingsourcebook.com/search_results?sid=31&tid=74
12:16:06 From Steve Gurney - ProAging Community : Daughterhood is a community of people supporting each other in the challenges, realities, and joys of caregiving through connection, support, and education. https://daughterhood.org/
12:19:55 From Christine Smith : Nicole, thank you for being SO OPEN!! I applaud Anne Tumlinson and the REAL support and listening people find in Daughterhood
12:22:44 From Maria Delpizzo : I have a friend with a husband who has Alzheimer's.
12:22:50 From emily kearns : My sister is aging solo with her dog. She refuses diagnosis but is clearly living with MCI or early dementia. As a family, we're very concerned as she is alone. We are a close family, but not living with her.
12:24:40 From Margie McNally : I have hear the acronym SHIELS
12:24:51 From Nicole Smith to Hosts and panelists : shield
12:24:55 From Nicole Smith to Hosts and panelists : sleep
12:24:58 From Nicole Smith to Hosts and panelists : handling stress
12:25:00 From Sarah Ray : Diagnosis refusal/resistance is understandable…AND, it’s so worrisome and frustrating for the family of someone who lives alone and who doesn’t have regular socialization. The pandemic did my mom no favors.
12:25:36 From Margie McNally : SHIELD sleep, handle stress, interaction with others, learning, diet
12:26:19 From Steve Gurney - ProAging Community : Lifestyle Interventions for Brain Health: Dr. Tanzi’s “SHIELD” Plan https://www.massgeneral.org/neurology/mccance-center/clinic/shield
12:28:13 From purushottam sharma : Be Aware is key. Thanks for echoing you both @Steve and @Nicole :), Prepare and Build - Reasons you trying to help people. #AlertforCrisisManagement
12:28:18 From Maria Delpizzo : what about the costs? are there any economical resources?
12:29:31 From Nicole Smith to Hosts and panelists : www.alzauthors.com
12:31:20 From Betsy Kurtz : At the age of 96, Margie have a conversation with your mom about goals of care and what's most important to her and focus on those things. Sometimes we do things WE want rather than what our loved ones want.
12:32:31 From Margie McNally : Yes. Thank you, She has Alzheimer’s and short term memory is gone.
12:33:37 From Steven Gordon to Hosts and panelists : Can you give us a sense of what “very expensive memory care” costs? Thanks.
12:34:31 From Steven Gordon to Hosts and panelists : Thanks.
12:37:34 From Margie McNally : This is just like my story Nicole!
12:40:25 From Charlene Floyd : Thank you so much for this. It is so helpful
12:40:28 From Jean Ross : AMEN!! It is ABSOLUTELY too much for one person
12:42:49 From Jean Ross : The stigma is what prevents people seeking help!!!
12:43:29 From Margie McNally : I have also heard mention of a connection between dementia and poor dental hygiene
12:43:33 From Sarah Ray : I think my mom worries that a dementia diagnosis now somehow may invalidate all the work and accomplishment she experienced in her life
12:43:51 From Christine Smith : Another resource is AlzAuthors. Nicole, have YOU submitted DIAGNOSIS DEMENTIA to these volunteer book vetters? AlzAuthors recommends hundreds of books that approach dementia from SO many angles.
12:44:44 From Steve Gurney - ProAging Community : A Dementia Friend learns about dementia and then turns that understanding into action. We all have a part to play in creating dementia friendly communities! https://dementiafriendsusa.org/
12:44:51 From Deborah Smith : My 15 year old died from Dementia and an it was shown high levels of led due to led in paint he was using.
12:44:53 From emily kearns : I coordinate Dementia Friends Baltimore County. We offer in-person and virtual sessions - free!
12:45:06 From emily kearns : dementiafriendly@baltimorecountymd.gov
12:45:10 From Deborah Smith : sorry, high levels of lead
12:45:16 From emily kearns : We are the Dept of Aging, an area agency on aging.
12:45:32 From emily kearns : See, Dementia Friends USA and Dementia Friendly America
12:45:33 From Steve Gurney - ProAging Community : Whether you’re a caregiver, family member or living with dementia, you’ll find the support you need from decades of caregiving within our Bookstore, Podcast or from other Helpful Sites – plus our AlzAuthors Blog brings you encouraging real-life stories behind each resource. https://alzauthors.com/
12:46:03 From Nicole Smith to Hosts and panelists : I am on Instagram @dementiabookreview
12:46:05 From Jean Ross : I am the friend from Indiana! Dementia Friends Indiana made a virtual Dementia Friends session if your state does not have one and you want to become a Dementia Friend: https://www.dementiafriendsindiana.org/become-a-friend/watch-video/
12:46:49 From Deborah Smith : an autopsy was conducted
12:46:52 From purushottam sharma : I am Dementia friend from India, working in #myvillage project
12:48:40 From veda vazquez : i sent my mother a journal to capture he life. i asked her to continue her legacy
12:48:57 From Nicole Smith to Hosts and panelists : love the journal idea!
12:49:47 From Suman Nayyar to Hosts and panelists : Have u heard about Accupuncure as a option to help with dementia?
12:50:20 From veda vazquez : WHAT A GREAT IDEA!!!
12:50:37 From Steve Gurney - ProAging Community : USAging and the Eldercare Locator have launched the 2023 Home for the Holidays campaign! The centerpiece of the campaign is a brochure and vaccine fact sheet, which highlight the important and potentially life-saving role vaccines play in helping older adults stay healthy and connected to local, community-based resources they can use to access vaccines. https://www.usaging.org/
12:50:48 From Suman Nayyar to Hosts and panelists : I am planning to try that for my husband
12:52:15 From Jean Ross : Steve you need to become a Dementia Friend. The goal in being a Dementia Friend is to find what books are left on their bookshelf so you can connect with them as a pserson!
12:52:45 From Jean Ross : Nicole’s story and what she does is exactly what a Dementia Friend does…find ways to bring your person joy!
12:53:06 From Jean Ross : Hi Nicole!!
12:53:17 From emily kearns : Steve - yes - we do it every First Tuesday, free and virtual, noon to 1:15 PM, ET.
12:54:31 From Margie McNally : My mom loves Scrabble
12:55:29 From Deb Merriner : So many resources shared today! Thanks so much for all the amazing information. This was an awesome webinar!
12:55:44 From Deborah Smith : Thank you Steve and NIcole, very informative
12:55:49 From Jean Ross : ???????????
12:56:02 From veda vazquez : can you give suggestions of stragdedy games i can't spell
12:56:03 From Nicole Smith to Hosts and panelists : jean you are a rock star! Primary Record!
12:56:10 From Steven Gordon to Hosts and panelists : Thanks. Very informative discussion.
12:56:46 From Carol Cockerline to Hosts and panelists : Thank you for all the great information
12:56:48 From Joyce Dimmock : Steve and Nicole, thank you!
12:56:49 From Steven Gordon to Hosts and panelists : Steve, Can you remind us of your solo aging groups?
12:56:49 From Steve Gurney - ProAging Community : How to Improve Brain Health to Extend Independence https://www.retirementlivingsourcebook.com/videos/how-to-improve-brain-health-to-extend-independence
12:56:50 From Kelly Lambert : Steve: BCAT!!
12:56:55 From Lisa Sordi to Hosts and panelists : This is so helpful Steve and Nicole! Thank you!
12:57:04 From veda vazquez : Thank you so much
12:57:34 From veda vazquez : I can hardly wait for the coming discussions
12:57:43 From Christine Smith : Thanks to BOTH of YOU! I guess you're unpacking a moving van now, Nicole...?
12:57:59 From Margie McNally : Thank you for these informative sessions!
12:58:15 From Steve Gurney - ProAging Community : The BCAT® Approach provides a go-to resource for Healthcare Providers, Individuals concerned about memory loss, and Families and Caregivers. https://www.thebcat.com/
12:59:18 From veda vazquez : AWESOME Nicole
12:59:26 From Suman Nayyar to Hosts and panelists : Brief cognitive assessment tool -BCAT
12:59:37 From Steve Gurney - ProAging Community : Brief cognitive assessment tool -BCAT
12:59:58 From Steven Gordon to Hosts and panelists : Lived experience is a great way to develop expertise!
13:00:02 From emily kearns : TY!
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