Open Discussion on Caregiving

This was an open discussion on the topic of caregiving moderated by Steve Gurney of the Positive Aging Community. The originally scheduled panel member Bobbi Carducci author of Confessions of an Imperfect Caregiver fell ill - stay tuned for rescheduled discussion.

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12:12:11     From  Patty Hagen : Ask for Help, try not to get too consumed by the thought of having to provide all the care yourself. It is okay to reach out.

12:16:00     From  Steve Gurney - ProAging Community : Helping Older Adults and Caregivers Build the Networks They Need for Successful Aging https://www.retirementlivingsourcebook.com/videos/helping-older-adults-and-caregivers-build-the-networks-they-need-for-successful-aging

12:17:03     From  Ruby Nissen : my husband has mci  I know how important self-care is for a caregiver, however he gets angry when I go out with friends.  I also bought him a medical alert to wear when i'm not home.  I have to give it to him when I leave.  how do I handle is anger?  also, when someone says they're willing to help, I've learned I need to tell them specifics as to what I need.

12:19:22     From  Ruby Nissen : mild cognitive impairment

12:19:35     From  Jose Ramos : Mild Cognitive Impairment

12:22:14     From  Mike Pearlman : In some cases (e.g., a disease), caregiver having their own medical concerns but reluctant to share with the person they are caring for, perhaps feeling guilt if they were to do so.

12:28:38     From  Ruby Nissen : my husband now attends an mcr group sponsored by insight memory care in their sterling facility.  great place for him to attend.  the reason he attends is his doctor told him to go.

12:31:37     From  Steve Gurney - ProAging Community : https://www.insightmcc.org/

12:35:05     From  Jose Ramos : There exist other ways to communicate other than logic and reasoning. The brain can share emotions without words.

12:37:00     From  Kristen Eichleay   to   Hosts and panelists : I have some suggestions for caregivers that I recently got from a friend. Is chat the best way to share that? Is there another way to share it?

12:37:11     From  Barbara Marple   to   Hosts and panelists : Can you shared things you have heard from caregivers/ family dealing with transition from mid to late stage ALZ . That wondering how their decline will go , how fast or slow. My mother is being cared for at my sister’s house by her and her family. I find an increasing anxiety for me at this point of how to prepare. My mom is not bedridden yet.

12:40:10     From  Steve Gurney - ProAging Community : Making Friends with Death: A Buddhist Guide to Encountering Mortality https://www.amazon.com/Making-Friends-Death-Encountering-Mortality/dp/1570623325

12:45:12     From  Steve Gurney - ProAging Community : Nursing Home Abuse and Neglect with Attorney Joe Musso https://www.retirementlivingsourcebook.com/videos/nursing-home-abuse-and-neglect-with-attorney-joe-musso

12:46:37     From  Ruby Nissen : i need to leave  thank you for your and other participants suggestion

12:49:10     From  Steve Gurney - ProAging Community : From Barbara Marple 

Can you shared things you have heard from caregivers/ family dealing with transition from mid to late stage ALZ . That wondering how their decline will go , how fast or slow. My mother is being cared for at my sister’s house by her and her family. I find an increasing anxiety for me at this point of how to prepare. My mom is not bedridden yet.

12:56:44     From  Patty Hagen : Sometimes, the decline also depends on what other medical conditions someone is living with...

12:57:25     From  Barbara Marple   to   Hosts and panelists : Do you anticipate rescheduling today’s speaker?

12:58:18     From  Barbara Marple   to   Hosts and panelists : Thank you for the plan B approach I found your insights helpful

12:59:24     From  Lena Carosa   to   Hosts and panelists : Thank you for the much needed information